“I don’t want to go out places Mommy. People look at me weird when I am rocking or stimming. And I don’t want them seeing me check my blood sugar. I don’t want to explain that I’m diabetic. I’m embarrassed.”
“They’re probably wondering what you are doing. You know you can tell them you are autistic and that rocking or stimming relaxes you. Your ADHD brain also means you have a lot of energy. And there is no shame in having Type 1 Diabetes. It’s a medical condition and lots of kids have it.”
“Do I have to tell them?”
“No, of course not. It’s your choice. Just remember, be proud of who you are because you are pretty amazing.”
This was one of our easier conversations now that Michael is a tween in puberty. Puberty is not easy, but when you have autism, ADHD and Type 1 Diabetes you are riding quite a roller coaster of emotions, as are your family. My heart breaks for Michael at these moments. He does not like going out to stores unless he has no choice, as he has become super self conscious about who he is. Thankfully he still goes on his solo walks and bike rides. He likes the independence, but being out in public is stressful as he learns to handle how different he is from a lot of people. Dad and I are gently encouraging him to be himself, work though the anxiety with strategies, and I hope that with time, his social fears will go down. We are always looking for new ways to help him tackle his fears.
On the other side, we have moments when he pushes us away and does not want to talk. During those moments, we respect his boundaries reminding him that we are close by when he wants to talk. Sometimes he does this politely, other times he can be rude about it. We have had talks about language, respecting our boundaries, and his responsibilities as he is getting older. We have the hyper days and the angry days. We have the anxious days. All in all, it’s challenging, and when I feel that it’s becoming too much, I take five in my corner, meditate and do some yoga, and then remember how hard these developing years are for all children. It just ends up being more challenging, like so many other things, for our exceptional kids.
I remind myself that I am doing the best that I can to be there emotionally, physically and spiritually for my child. I remind myself that I don’t have to be perfect, just show him and help him feel that is loved always, even when he messes up. I remind myself that this too shall pass. A lot of parents with older exceptional kids have shared that the early teen years are the hardest as our kids find out who they are and where they are going. Finally, I look at the list of positives our Educator suggested we make of all the amazing things Michael has accomplished even with the challenging moments still popping up. She had said it would serve as a positive reminder for Michael as well as Dad and I over how far he has come with independence, skill acquisition, and show us all that he will get through the challenges of adolescence too. She was right. I look to that list. We all do.
Exceptional Parents, how easy or hard do you find your Exceptional Child’s growing up milestones? Whether they are sailing through these stages or struggling, I think as long as we continue to persevere alongside them with a loving ear, new strategies and tools to use, and lots of compassion for them and ourselves, we’re on our way to growing together. Until next time.