Our weekends have been getting progressively better, though there is still aggression, frustration and anxiety as Michael continues to hone in on his ability to control how he feels and what he does to us and himself. Regardless off how frustrated and overwhelmed I sometimes feel, I am proud as I see him making progress slowly in so many areas. Some days are better than others. Some days I am more tolerant and stronger than on other days too. And on some days when I feel like throwing in the towel completely, I find myself suddenly knowing exactly what direction I need to take. I call this my spirit talking to me. Prayer and meditation have made this voice very strong, and when I can’t hear it, I get quiet, physically and mentally so I can hear it more clearly. This weekend I heard it when it said we needed to take Michael off a medication he is on. I have been wanting to do this for awhile, but was worried. This medication originally helped so much with aggression, and what if things got much worse if he went off it? I did not like the side effects of it, and the new me has decided she will not fear the unknown. The only way to see what worked, medication and therapy and frankly life-wise, is to try and risk failure. And what is so bad about failure anyway I found myself thinking this weekend? It really means we are alive and human. Mistakes make us grow stronger. They make us appreciate the good times. Just like when we are sick we appreciate being healthy. You get the drift.
This summer has been another summer of growth for Michael and our family, and not just in terms of his health and challenges. Dad and I are being pushed to make personal changes too, as well as changes in our marriage, and in what we can expect from one another as each lets the other one grow. There have been LOTS of growing pains. There have been lots of moments when I have felt angry and said, why is it so hard? But, at other times, things have gone so smoothly, so easily. Decisions like taking Michael off his medication is so far going well. Encouraging Michael to join another soccer league has been a success. Pushing myself to clean out the junk, literal and figurative in my home, mind and heart, is helping me to see myself for who I am now, and what I want to change or improve upon, no excuses, no self-pity. We all have our crosses to bear as a good friend once said to me. She is so right. I am often awed by people who do not let life’s stresses and strains make them bitter. I decided five years ago to devote myself to becoming one of those people. Those closest to me say I am. And when I start to stray from those good intentions, family and friends help me find my way back.
Now that I am back, wow! What a difference it makes being my body. What a difference it makes in how I treat myself, advocate for my son, and treat those around me. Even on hard days, I see my negative emotions for what they are-transient and temporary. I recognize exhaustion, self-pity and anger as things that I haven’t addressed and so I do and make the necessary changes. As a exceptional parent, I have been able to make positive changes and relate to Michael in a calm and loving way, due to operating from my soul upwards. Parenting with your gut is not easy work, but as long as you take care of you, remember the beauty and uniqueness of your child, and stay positive no mattter what, your heart and soul will guide your mind to the right place, people, and therapies for your child.
Exceptional Parents, are you feeling stuck wondering how to help your Exceptional Child through a rough time? Are you personally feeling stuck? As hard as it is, step back and look inside of yourself. How are you feeling? Are you tired, angry or scared? Before you can help and hear your child’s cry for help, you need to hear your own soul’s cry for help and heal yourself. You will know you are on the right track when your thoughts about life are more positive, you practice gratitude in even the most challenging times, and you admit when you are overwhelmed. Meditate, pray, exercise, reach out to others. Get counselling. Do what you need to do so you can get back in the flow of your life and give your Exceptional Child what they most need now-hope and love from the most important person in their life-their parent. Until next time.
I am a writer, speaker and parent coach. I blog about how my exceptional son with autism and type 1 diabetes is raising me to a better human being and exceptional mom. My mission is to empower other exceptional parents to trust in their parenting instinct while letting their exceptional child open their eyes to all that is possible! For more information on my coaching services and to download a copy of my FREE EBOOK “5 WAYS TO HANDLE EXCEPTIONAL FAMILY ANXIETY” see my website, http://www.creatingexceptionalparenting.com.